tag:blogger.com,1999:blog-29350143114264341662024-02-07T07:57:05.784-08:00Brynlee's Battle with SMATara & Markhttp://www.blogger.com/profile/05784716340853797622noreply@blogger.comBlogger96125tag:blogger.com,1999:blog-2935014311426434166.post-67860716748301767162012-01-17T13:54:00.000-08:002012-01-17T14:22:39.726-08:00Where do I begin?Well, here I am. Its been 7 months 11 days since my baby passed away. Unless you have lost a child there are no words to explain the loss I feel everyday. So much has happened since she died. So much going on in our lives....without her. Everyday when I wake up I wait to hear her say, "mommy I waked up," then I remember she's gone. It hurts, like you wouldn't believe. She was so full of life and energy and happiness, that its still hard to believe she was gone in the blink of an eye. I still haven't dreamed of her. I think its my way of coping. I just don't think I'm ready to see her in my dreams. <br />A couple days after she died her nurse called me. She said that the autopsy revealed that her lung was so collapsed that they couldn't even force it open. They said no matter what she would have died soon anyway. Even hearing that I still blame myself. I know that I shouldn't but I still do. I go over that day all the time and it still hurts. I miss her terribly. <br /><br />I don't know what we would do without Nakota. She makes our days better. Its so bittersweet to see that my girls like the exact same movies and shows even though they didn't get to know each other. Brynlee would love outrageous Nakota! Nakota calls her Brymwee. For awhile after she passed away, Kota would point to Brynlee's picture and then at the ground as if to say where is she? I think Brynlee waited for us to have a baby to keep us occupied. She knew I would fall apart if I didn't have another child to love. She never wanted anything to hurt me....and it still hurts like hell.Tara & Markhttp://www.blogger.com/profile/05784716340853797622noreply@blogger.com9tag:blogger.com,1999:blog-2935014311426434166.post-63380283565907100242011-06-09T10:28:00.000-07:002011-06-09T10:31:14.440-07:00Brynlee's ObituaryBrynlee Belle Liston<br /><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjeNI9lFa-u3e5VJVUj4LvkNTlLGUV89qoMa0HRMoGUfJ1tvLTdWXnPtzLUx-svnbCVM9lh7zyGxsIu8n3Ulxxf0LxJYewpvSDbpOijkZkuejYEClW_1i-3OfknId211IuI-Ar7QEIk8oOg/s1600/IMG_9151.JPG"><img style="float:left; margin:0 10px 10px 0;cursor:pointer; cursor:hand;width: 214px; height: 320px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjeNI9lFa-u3e5VJVUj4LvkNTlLGUV89qoMa0HRMoGUfJ1tvLTdWXnPtzLUx-svnbCVM9lh7zyGxsIu8n3Ulxxf0LxJYewpvSDbpOijkZkuejYEClW_1i-3OfknId211IuI-Ar7QEIk8oOg/s320/IMG_9151.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5616273720047618866" /></a><br /><br />"Our Little Princess"<br />August 29, 2007 ~ June 06, 2011<br />Brynlee Belle Liston passed away peacefully surrounded by her loving parents and aunt on June 06, 2011.<br /><br />Brynlee was born on August 29, 2007. At 5 months old she was diagnosed with Spinal Muscular Atrophy and her valiant fight began. Though her time here was short, Brynlee forever changed the life of anyone she met. Her intelligent eyes and sweet smile would melt the hearts of those around her.<br /><br />Although Brynlee's illness made her appear frail, she possessed an incredible strength of will, perseverance, and the ability to overcome incredible odds and challenges.<br /><br />Some of her favorite things were playing with her baby sister Nakota, watching Spongebob with her Daddy, snuggling for hours with her Mama, and of course Cinderella. She recently got to have her first sleepover with her Aunt Tasha and her cousin Mia and she had the best time ever doing the things that other little girls get to do.<br /><br />With Brynlee's passing, we are reminded that her life is one to be celebrated. The simple joys that she took in every moment and the laughter that she met life with are lessons that we can all thank her for. Although she will be missed each and every day, we will forever hold her in our hearts and remember the pleasures she found in life around her.<br /><br />Brynlee leaves behind many amazing caregivers. Her wonderful pediatrician Dr. Tanya Jackson, her loving and very special Nurse Robyn, so many home care therapists and caring staff at Primary Children's Hospital, all treated her with an amazing respect, love and support that greatly enhanced her quality of life.<br /><br />There is a special place in our hearts for Dr. Kathy Swoboda; because of her continued dedication, love and support Brynlee was able to beat some of her toughest medical challenges. Although a cure was not to be found in time for our Angel, we know that through the dedication of the medical community a cure for Spinal Muscular Atrophy will be found.<br /><br />Brynlee is lovingly survived by her parents, Mark and Tara Liston, her baby sister Nakota, her grandparents, aunts and uncles, and her cousins. A private memorial celebration will be held for close friends and family.Tara & Markhttp://www.blogger.com/profile/05784716340853797622noreply@blogger.com12tag:blogger.com,1999:blog-2935014311426434166.post-88376160753585208932011-01-15T22:19:00.000-08:002011-01-15T22:37:36.491-08:00Intubated again!Brynlee woke up this morning not doing well at all. We called 911 and took her to primary's. I stayed home so I could feed Nakota before we got up there. I thought she would be intubated by the time I got up there but when i got there she was doing much better. They did a chest x-Ray and saw that she has pneumonia in her right lung. They started antibiotics and sent us up too picu. We decided Mark would stay the night with her because Kota has to nurse and doesn't take a bottle and they won't let her in the picu. So I headed home to get marks overnight things and to feed Nakota. While I was feeding her, Mark called and said that when I left Brynlee started working really hard to breath and that they were going to intubate her. They called the special doc in because she has a difficult airway. Thankfully he got it the first time this time. I headed back up there and got to see her before we got kicked out for shift change. I hate seeing her that way! It breaks my heart, she is like a totally different kid on life support. I hope and pray this is our only intubation this year! This is just sooooo hard on her.Tara & Markhttp://www.blogger.com/profile/05784716340853797622noreply@blogger.com3tag:blogger.com,1999:blog-2935014311426434166.post-21764466075659672372011-01-06T20:27:00.000-08:002011-01-07T04:51:01.795-08:00Sooooo long!So here it is almost a year after my last post. So much has happened that I don't even know where to begin. I guess I will let the people who are not my facebook friends know that we had our baby girl. Nakota Myckell was born on July 2nd, weighing 7 pounds 11 ounces. After a little deliberation we have decided to let you all know that we used a sperm donor to get pregnant with her. They now test donors for SMA, so that is how we knew she wouldn't be affected. It is the best decision we have ever made. The reason we are telling the world this is to let SMA families know there are other alternatives. We love our little girl to pieces and there is nothing we wouldn't do for her. She is one million percent ours! We are an open book, if there are any SMA families out there who would like more info on how we got to where we are today, I would love to help. <br /><br />Brynlee is doing amazing! The stuff that comes out of her mouth is hilarious. She keeps me laughing everyday. I'm not going to lie though, this three year old business is hard. She wants to do everything herself, lol! She has not made any significant change in function and her scoliosis hasn't changed in a year. We haven't had any hospital stays since April and hope to keep it that way. We just had pictures done by our friend Pete so I thought I would post them. I promise I am going to start posting more often!<br /><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgzvm9NssH6K9J2vCVXtcwhK7ohRrYMITEfli5n0JJonEnRh8K4kJ5X6SEX8zzBd3GUUPxCgdh70biZRzTsBbfU09xY1WeUdni9RwtSv6e9x45B9CvRnZgUzG9Oik-DDIDc7-dnh89mVN5x/s1600/IMG_9207.jpg"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 226px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgzvm9NssH6K9J2vCVXtcwhK7ohRrYMITEfli5n0JJonEnRh8K4kJ5X6SEX8zzBd3GUUPxCgdh70biZRzTsBbfU09xY1WeUdni9RwtSv6e9x45B9CvRnZgUzG9Oik-DDIDc7-dnh89mVN5x/s320/IMG_9207.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5559299468046073842" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgJF5HiwlpjhaN4JguWR6awIMcHuV89fpKCXz27dPu2OvnkUu_gb6Ynbrt1dVowIrNh7JMmAGZg8fZzzfdn79_n6YxjLitJHpex9yD-CBD1WK9377IGOCK6F591rhykEkh1lLcbVT6ZpFUb/s1600/IMG_9149-1.jpg"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; 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margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 214px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjk_pUtKm6H7CESsO4fM-1uK9aTiSHVLpOGEDD3cHxyFhQCwkJTUTpm-ozLwgxGQuXYvsjXx9OJGSg0O8t4LWGZNXIiGmTKuRJabVyarFFw3Xc7sMgjMExpv8z2wLzinTYngCcqYWhLofN-/s320/IMG_9384+mod.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5559299456384252194" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh5VvBVyJc2ac0oXMFHDAx4VKC0hyKOj4H0lC9J-jtbshkGAxC2WCbF_WqTMwd14PhDxpXhgGN3a8RW9rf1DXE7GHRT_jV5S-Ey6vvZdWrs0yUQaWEIBMISiyN6M-f1Uj0JyMjH6KE4AGCK/s1600/IMG_9364.jpg"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 214px; height: 320px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh5VvBVyJc2ac0oXMFHDAx4VKC0hyKOj4H0lC9J-jtbshkGAxC2WCbF_WqTMwd14PhDxpXhgGN3a8RW9rf1DXE7GHRT_jV5S-Ey6vvZdWrs0yUQaWEIBMISiyN6M-f1Uj0JyMjH6KE4AGCK/s320/IMG_9364.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5559298992008189138" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjnd0c7Vl_I8raek_o8C4_eOQAQcxDRdcSbmYsV0NUm5OUikk9LoATfapXwLZ_9gSv97f9vtY3PNVIaZOcyHnYpDIwZcy4yE4hy57p2978HUiUT9_sXkKiTXc_fOoHwen9qNQ58ZPr5J3hu/s1600/IMG_9103-1.jpg"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 241px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjnd0c7Vl_I8raek_o8C4_eOQAQcxDRdcSbmYsV0NUm5OUikk9LoATfapXwLZ_9gSv97f9vtY3PNVIaZOcyHnYpDIwZcy4yE4hy57p2978HUiUT9_sXkKiTXc_fOoHwen9qNQ58ZPr5J3hu/s320/IMG_9103-1.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5559298989603302034" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjGcXeb-p1AmGwqwTR4kYaT49kcbNWwFWloOCZCYv3r03L2dYZeYRVf6nYxs59hPxGrqI3RiA5SUQ0l18rCr5yCmD9GTB-h4Vzw6CfVx6x3FHcETaQncJGxV_J5O9xRLuh9UT1ixfxebzuV/s1600/IMG_9106.jpg"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 242px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjGcXeb-p1AmGwqwTR4kYaT49kcbNWwFWloOCZCYv3r03L2dYZeYRVf6nYxs59hPxGrqI3RiA5SUQ0l18rCr5yCmD9GTB-h4Vzw6CfVx6x3FHcETaQncJGxV_J5O9xRLuh9UT1ixfxebzuV/s320/IMG_9106.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5559298987781598258" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhqpCaTDV6_XBAWr2zYw1VrcV2So2vwS4-dTsH6nLgbg7YxzLwu3NlQmpVlu62cv5ZZiCWfkgdhjez48lpJ1C4F_tg7Vmc6qvvmX47Tjl7p6gPJe2RICJq7XnQI2_9747bV6OVUCgDoY3C9/s1600/IMG_9154+mod.jpg"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 214px; height: 320px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhqpCaTDV6_XBAWr2zYw1VrcV2So2vwS4-dTsH6nLgbg7YxzLwu3NlQmpVlu62cv5ZZiCWfkgdhjez48lpJ1C4F_tg7Vmc6qvvmX47Tjl7p6gPJe2RICJq7XnQI2_9747bV6OVUCgDoY3C9/s320/IMG_9154+mod.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5559298982248223554" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgEoPknCvls4DOAhBnLkBrRGMOhq8-MQULIXrWHhGQrfvKrfA-EOd08_LPMUXDgqgr2E0WPUT1RybVQSZxI8geQp_MKm2v3KgoR2YU0Y7PUsr2Cvex28iu9n__X3sWxtPThpsf6pQAU9b2h/s1600/IMG_9151mod.jpg"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 214px; height: 320px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgEoPknCvls4DOAhBnLkBrRGMOhq8-MQULIXrWHhGQrfvKrfA-EOd08_LPMUXDgqgr2E0WPUT1RybVQSZxI8geQp_MKm2v3KgoR2YU0Y7PUsr2Cvex28iu9n__X3sWxtPThpsf6pQAU9b2h/s320/IMG_9151mod.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5559298979950993106" /></a><br /><a href="http://pmphotoart.com"></a>.Tara & Markhttp://www.blogger.com/profile/05784716340853797622noreply@blogger.com10tag:blogger.com,1999:blog-2935014311426434166.post-15710654431141496412010-04-05T14:32:00.000-07:002010-04-05T14:56:36.935-07:00We are HOME!I am such a slacker. I just cant seem to get up the energy to get on here and post. After 15 days in the PICU with a virus that is like RSV, Brynlee and I are home!It was a long scary one this time. Thankfully she was only intubated for a few days. Brynlee has this little panic thing that she does now when someone else is doing her treatments. She even does it to me sometimes. She starts hyperventilating which closes off her throat, her sats then drop with lightning speed. The lowest O2 we saw was 30. Even though her lung was collapsing I am certain that this had a little bit to do with her intubation. They were doing a treatment on her when I had gone to lunch. Anyways her throat closes and doesn't let any air into her lungs. She starts turning blue and gets very lifeless. We have to put her Bi-pap back on, crank up the O2 and shift her neck so that she cant close it off. When she can't fight it anymore her O2 starts to climb again. They started giving her drugs for a while there during her treatments for her anxiety. She started telling all the RT's that mom was going to do her treatments. <br /><br /> They put a pic line in after I kept getting on them about taking so much of her blood. I can't believe how much blood they think they need everyday for stuff that is not going to change her treatments anyways. I told them that she was already on antibiotics and to stop taking so much. She is now Iron deficient, HUH, WONDER WHY?!! The Pic was great for us because it wasn't in to long and she didn't have to get anymore pokes. Her IV's kept going bad anyways. Her veins are so small. <br /><br /> I had a hard time this visit because it took three docs to do everything. It took 3 to intubate and 3 to place the NJ(feeding tube through her nose). Apparently my little ones anatomy is a little out of place. Her stomach had stopped working the way it was supposed to and she wasn't digesting anything which is why she needed an NJ even though she has a g-tube. <br /><br /><br /> After many nights of sleeping on an uncomfortable chair while 6 and a half months pregnant we got home on Saturday. We got to have our princess home for Easter and she loved decorating her eggs. I am still doing her treatments every 4 hours during the day and every 5 at night. I am loving the fact that we got her a big ol queen size bed. Now I just sleep right next to her when she is sick and Mark comes and wakes us up when its time for her treatments.Tara & Markhttp://www.blogger.com/profile/05784716340853797622noreply@blogger.com10tag:blogger.com,1999:blog-2935014311426434166.post-38590878000472665072010-02-02T14:29:00.000-08:002010-02-02T14:40:17.441-08:00I HATE SMA!I know I haven't been updating and I will soon I promise. <br /><br />SMA took another precious baby today and I can not stop crying for this family. This is the second son they have lost to this cruel and deadly disease. Hodges will be forever remembered. Ashley we are so, so, unbelievably saddened for your loss.<br /><br />http://dailylivingtodie.blogspot.comTara & Markhttp://www.blogger.com/profile/05784716340853797622noreply@blogger.com2tag:blogger.com,1999:blog-2935014311426434166.post-14179499464682891172010-01-14T15:52:00.000-08:002010-01-14T15:53:24.814-08:00Chase Community Giving on FacebookThe Gwendolyn Strong Foundation (http://www.gwendolynstrong.com/) received a wonderful opportunity to win a $1 Million dollar grant from Chase Bank because of incredible wide ranging support, but now they need help on getting the word out there letting people know how to vote starting January 15th. And because you can only vote for GSF one time in the final round, we need to work extra hard to get beyond our networks and reach new people to vote for GSF. With your help, together we WILL see an end to this cruel disease!<br /><br />So, in addition to VOTING, please commit to at least 3 things YOU will do from January 15th to January 22nd.<br /><br /><br />•VOTE: go to http://voteforsma.com/<br /><br />•Email friends the voting link<br /><br />•Post the voting link to your Facebook status all week long<br /><br />•Blog about GSF and the $1M miracle to cure SMA<br /><br />•Twitter the voting link<br /><br />•BE ANNOYING (we mean persistent:) ALL WEEK LONG! In addition, here are some of the creative plans brewing by our supporters. Will you go the extra mile by doing one of these, too?<br /><br />•Flyer ---> Download, print, and pass out our campaign flyer. This is especially useful for large groups or people who you don't have email addresses for such as schools, churches, and businesses who you have a personal relationship with. Click here to download the flyer.<br /><br />•Make it Easy ---> Have your home or work computer open to the voting page - http://voteforsma.com/ - and tell every person you see to vote. Each person has to log in, but that's it. Simple and brilliant! People are setting up a voting station at local places in the community. Could you set up a voting station at your work or somewhere in your community? <br /><br />•Contact Groups + Organizations ---> People have asked the organizers of groups they belong to to get involved by emailing a personal plea with the link - http://voteforsma.com/ - to sorority lists, mom's clubs, company lists, book clubs, alumna and professional organizations, etc. potentially reaching thousands of members! Do you belong to a group who would send an email to its members???<br /><br />•Direct Message Facebook Friends ---> Since this is on Facebook, a direct message with a personal plea to all of your FB friends goes a long way. So in addition to posting it on your status, send an email to every Facebook friend. In fact, on http://voteforsma.com/ there is a button that reads "Invite a Friend". By simply clicking this and checking the boxes, you can message your FB friends to vote for GSF. Will you take this extra step?<br /><br />•Contact BIG bloggers ---> Several people have or are planning to contact bloggers with a large following they think would be a good fit. Imagine if hundreds of people blogged about GSF and posted the video! Do you know any bloggers you can ask to help? <br /><br />•Get Students Involved ---> One teacher incorporated GSF into her lesson on "grassroots" and posted the voting link - http://voteforsma.com/ - on the board for her students to write down and visit at home. They are excited about making a difference. Come Jan. 15, I smell a homework assignment :) Do you know any high school or college students willing to campaign for us on Facebook?<br /><br />Please vote for The Gwendolyn Strong Foundation sometime between January 15-22. We NEED your help. <br /><br />THANK YOU SO VERY, VERY MUCH!Tara & Markhttp://www.blogger.com/profile/05784716340853797622noreply@blogger.com2tag:blogger.com,1999:blog-2935014311426434166.post-91074111516380414222010-01-06T13:43:00.000-08:002010-01-06T13:49:33.525-08:00<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi17E5HceWrNBOmF148TjahAkR6gfrG2Yeuw8qvfb6B87kzYzi6TL010uKRXnJGIpU1iGE0mWPfzbpA1gqnTok1GbfuCSQZO8k8mVd2ermpk_5l3BcNG3jYvVTj84AwhdpVwq1O7BI10Gw9/s1600-h/IMG_4230.jpg"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 179px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi17E5HceWrNBOmF148TjahAkR6gfrG2Yeuw8qvfb6B87kzYzi6TL010uKRXnJGIpU1iGE0mWPfzbpA1gqnTok1GbfuCSQZO8k8mVd2ermpk_5l3BcNG3jYvVTj84AwhdpVwq1O7BI10Gw9/s320/IMG_4230.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5423746622288220898" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj2XS3UJbMFzzhIxxHFMjqVIhFDHDs5H_pvAPLHRkjAWnkuh9lBLoAfG5_0qM5wDhdJOlvnjW23uMJ4UaLQi34fMcAexrJWKUSLsttlcOzPaJIKbvOB4Rd-ftvsJDNLiG8KizSYvtowKHs3/s1600-h/IMG_4226.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 179px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj2XS3UJbMFzzhIxxHFMjqVIhFDHDs5H_pvAPLHRkjAWnkuh9lBLoAfG5_0qM5wDhdJOlvnjW23uMJ4UaLQi34fMcAexrJWKUSLsttlcOzPaJIKbvOB4Rd-ftvsJDNLiG8KizSYvtowKHs3/s320/IMG_4226.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5423746619283372354" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgUPtgUcOCs8fbA9PLzEns8H9pJhVcejOrTriuFvzgb_AQD4z6wKUazZyZSHE6MipqvaXdTbWW5L-TeSUvvJQqntkd0Y9yy7pAKTQ54y5wBphv7fZnqB1YF1JHzHrEceASLGwCozTOuKuUV/s1600-h/IMG_4228.jpg"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 179px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgUPtgUcOCs8fbA9PLzEns8H9pJhVcejOrTriuFvzgb_AQD4z6wKUazZyZSHE6MipqvaXdTbWW5L-TeSUvvJQqntkd0Y9yy7pAKTQ54y5wBphv7fZnqB1YF1JHzHrEceASLGwCozTOuKuUV/s320/IMG_4228.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5423746610963670082" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi57E80gIExJ88OhyphenhyphenTiXp8dtwwaYRyIkCJvpL3D6ocpihPpBbyOIYCC_8VNEvkuFX72jSHxjd4TeH01TU6hHP8NaYAliwljeT_PcF8beyyiWxe5GRVh2j-xi2caFdzhgRNrLgXbXpvACBuG/s1600-h/IMG_4217.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 179px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi57E80gIExJ88OhyphenhyphenTiXp8dtwwaYRyIkCJvpL3D6ocpihPpBbyOIYCC_8VNEvkuFX72jSHxjd4TeH01TU6hHP8NaYAliwljeT_PcF8beyyiWxe5GRVh2j-xi2caFdzhgRNrLgXbXpvACBuG/s320/IMG_4217.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5423746605631214690" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiedQcWdSTmRl1WzRWPxnFzIb6SWbrspeAUMlcM_aejM9TwkW7hyphenhyphens-AdzBZVCEXAQa7xXF_rjudYFR-o8yhvCUrF108ATLOY-U_GcAKjQ4lBC1cyiUrU6SXuQQGHepl0GPC7AfgkW9LLQ1L/s1600-h/IMG_4205.jpg"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 179px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiedQcWdSTmRl1WzRWPxnFzIb6SWbrspeAUMlcM_aejM9TwkW7hyphenhyphens-AdzBZVCEXAQa7xXF_rjudYFR-o8yhvCUrF108ATLOY-U_GcAKjQ4lBC1cyiUrU6SXuQQGHepl0GPC7AfgkW9LLQ1L/s320/IMG_4205.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5423746598666738482" /></a> <br />For Christmas Brynlee got a Doll house and a Ball pit. I am loving the pretend play. She loves playing dolls with dad more than mom though, lol!Tara & Markhttp://www.blogger.com/profile/05784716340853797622noreply@blogger.com4tag:blogger.com,1999:blog-2935014311426434166.post-69028077608853739292010-01-06T13:40:00.000-08:002010-01-06T13:43:22.635-08:00<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgqFOfPFiC3z46-4HSYh8dXHG93aKmTB_5VzmYOFbHtVwNqc6oEG5dwcXthtzXvsE2_ZBjnQR8-rH76xFKO9ctX-dy3rxQeoS10AmhcLNxbh0WfEsWhtTMJdNJRPWNhOUxtMiT4PefPlJlF/s1600-h/IMG_4180.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 179px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgqFOfPFiC3z46-4HSYh8dXHG93aKmTB_5VzmYOFbHtVwNqc6oEG5dwcXthtzXvsE2_ZBjnQR8-rH76xFKO9ctX-dy3rxQeoS10AmhcLNxbh0WfEsWhtTMJdNJRPWNhOUxtMiT4PefPlJlF/s320/IMG_4180.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5423745656529265058" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhnnJfxRtauVkyKRpyMQrnMY6Fvd3pBm2fShl4gHxKbnLz5WGHxARyVhw6r-ZJIEgmAEbw1yJsMc0jYcabqznfXDF9x5cGoaORcyvcWpIOvcl9Om0klojhN41WqDUMLb6ZJLPneEmwmFVQq/s1600-h/IMG_4183.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 179px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhnnJfxRtauVkyKRpyMQrnMY6Fvd3pBm2fShl4gHxKbnLz5WGHxARyVhw6r-ZJIEgmAEbw1yJsMc0jYcabqznfXDF9x5cGoaORcyvcWpIOvcl9Om0klojhN41WqDUMLb6ZJLPneEmwmFVQq/s320/IMG_4183.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5423745655124828946" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgkJ69GZDSJDJUijvFXRKkzLkg_s3lnBu3z1ZIFlfs2kk9UnOiNLspxOIqIrs5GB_B-JWqPnlu2jqTDNecNEw35zfUD0YB9hMpiL_8b7wTK1grUSBm-0IN_w7qhe-pvl4Eu3e-tto6REYDE/s1600-h/IMG_4176.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 179px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgkJ69GZDSJDJUijvFXRKkzLkg_s3lnBu3z1ZIFlfs2kk9UnOiNLspxOIqIrs5GB_B-JWqPnlu2jqTDNecNEw35zfUD0YB9hMpiL_8b7wTK1grUSBm-0IN_w7qhe-pvl4Eu3e-tto6REYDE/s320/IMG_4176.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5423745649131553266" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEilZyZIihr8I7ZLjpsKYJLoZDnb5vJ-dQJg1qaUOwpZXldY8IUt034CDYCP7dNGwiLmXfH3uhcx2yOS80ArT1hfC2-3dqUjI5sa7d3P0UMh6Sa_8ykjFrFRIT-gwQJ2XJ1Fv6W86KnCfYEC/s1600-h/IMG_4174.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 179px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEilZyZIihr8I7ZLjpsKYJLoZDnb5vJ-dQJg1qaUOwpZXldY8IUt034CDYCP7dNGwiLmXfH3uhcx2yOS80ArT1hfC2-3dqUjI5sa7d3P0UMh6Sa_8ykjFrFRIT-gwQJ2XJ1Fv6W86KnCfYEC/s320/IMG_4174.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5423745643235550514" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiNcZVY4STk2tGseMbRWZYqoUOHsuxGnriwfJ6gC4f9JJZWAbMn5FRPeuRTtsW9ppRsFYrUamn-D3iTZ6211sb-udY09lcEC1hIXRVdJaTIc22F4rSjHgs63Eq-6H9K2gUzmlIUtx93aJyo/s1600-h/IMG_4171.jpg"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 179px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiNcZVY4STk2tGseMbRWZYqoUOHsuxGnriwfJ6gC4f9JJZWAbMn5FRPeuRTtsW9ppRsFYrUamn-D3iTZ6211sb-udY09lcEC1hIXRVdJaTIc22F4rSjHgs63Eq-6H9K2gUzmlIUtx93aJyo/s320/IMG_4171.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5423745634098479554" /></a>Tara & Markhttp://www.blogger.com/profile/05784716340853797622noreply@blogger.com1tag:blogger.com,1999:blog-2935014311426434166.post-35132915974974356922010-01-06T13:36:00.000-08:002010-01-06T13:40:27.882-08:00<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgHbE8siJG0qzUA_93aaAGqRLJMUPLOSsjZGyzcVa_ls9aNSLZCPFmGqhtuYw-1JMyKRc9g7IjxblbT-aDRCFYKIdYcsBy53z_ZMqrXKRpB8gcDG5AgSCX9kSFPSzsqB0vpI9MT555md4Nf/s1600-h/IMG_4191.jpg"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 179px; height: 320px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgHbE8siJG0qzUA_93aaAGqRLJMUPLOSsjZGyzcVa_ls9aNSLZCPFmGqhtuYw-1JMyKRc9g7IjxblbT-aDRCFYKIdYcsBy53z_ZMqrXKRpB8gcDG5AgSCX9kSFPSzsqB0vpI9MT555md4Nf/s320/IMG_4191.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5423744916108502210" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhdtx0h80RPELsUTw8r-AhBdcEHkjH7E0i9_aoHjXkC4soH8ZiC-1IppGbbEqbAnGWiHmoy-Evpi8osxcljeUI10HxfKsydT-XQDgG0XTfuca3IvhRNgbDSAVdvTe9vuw6jWIymwPUnYm64/s1600-h/IMG_4194.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 179px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhdtx0h80RPELsUTw8r-AhBdcEHkjH7E0i9_aoHjXkC4soH8ZiC-1IppGbbEqbAnGWiHmoy-Evpi8osxcljeUI10HxfKsydT-XQDgG0XTfuca3IvhRNgbDSAVdvTe9vuw6jWIymwPUnYm64/s320/IMG_4194.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5423744909946839794" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjdwa23gFRosC2C45GsDk_ZoA68LjrlCLGUSeESQjGhQG7BicapqPi7xGtWCSrfgzjDgYIwGS_TScpg-5jMHpzZZqLy3hHv5bFG3Kp8tRcJFAnWpwY0VcM3I90sCtq4JevCvqNDuUV9hsY2/s1600-h/IMG_4193.jpg"><img style="display:block; 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margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 179px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgXMSI6zIIBuP14bCGld91Mjx4Tg9n_Nux5ljZpaAVh_pZbMMr43BX0guz3HIzA-y418TRaLjOTb5E9Lp5neJpYumSH04C2K0KVdVrIydELcjGTVtzsoNpeqn4_iJsjDf0cHbG-dMDOQPos/s320/IMG_4163.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5423744890029185314" /></a>Tara & Markhttp://www.blogger.com/profile/05784716340853797622noreply@blogger.com0tag:blogger.com,1999:blog-2935014311426434166.post-11775549746052235622010-01-06T13:22:00.000-08:002010-01-06T13:36:54.141-08:00<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj4aLDZCL5tyMD_yMjc_Eu2VtJRja1E6tKJdzUBKSXBqHMGw5PlL3u0no0esYG29ZEVJ6eN6o0W_da1Fzv6qc8Gi75Hr-N70bruzaNpol8uICqSLxoARzfMQmKWIlbX1CpnKhYIVeHwdK9R/s1600-h/IMG_4162.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 179px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj4aLDZCL5tyMD_yMjc_Eu2VtJRja1E6tKJdzUBKSXBqHMGw5PlL3u0no0esYG29ZEVJ6eN6o0W_da1Fzv6qc8Gi75Hr-N70bruzaNpol8uICqSLxoARzfMQmKWIlbX1CpnKhYIVeHwdK9R/s320/IMG_4162.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5423743647168957058" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhnM3HtRBJ-8wdvV2hxmNDPEMnWSiyB1PROYD-xxCGC6H1R85zC8wrSlXdTR3sqJZ7Ssb_vO3t2Qn79yMM7I2Lrr_vHqUUJNpI-CbvO2LWNZH_bpMV8abQ7-enAbPKyt7bMnjIBw7aQKbJS/s1600-h/IMG_4137.JPG"><img style="display:block; 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margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 179px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgeYVa6FevEbZtKT3-Xn-0jxC7UJ7jvSYQ2a1HMGdu80J6ZiGuwdnCesevlS87egsdVPQeNCAJnuxlQUm6NCW9-UAD7Kmb1XCtgpsMpPqikwljSiCNE3U0fv03FtEOaydlrFFMn3FyZIfCa/s320/IMG_4129.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5423743625863121442" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh13iBVjIKNBviBdTQ8xD8DRSRCEyiQz3S4s3uFqHqu9Zq-BKptY2jfbaSDEjMPwsck28WjyY_vO1iyTDzgiclQ8TJ8fpTA2wPtrofDz4EVyrhc4-tTkjNTw_2HYOLwR_w1iH0XLjKxasH3/s1600-h/IMG_4127.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 179px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh13iBVjIKNBviBdTQ8xD8DRSRCEyiQz3S4s3uFqHqu9Zq-BKptY2jfbaSDEjMPwsck28WjyY_vO1iyTDzgiclQ8TJ8fpTA2wPtrofDz4EVyrhc4-tTkjNTw_2HYOLwR_w1iH0XLjKxasH3/s320/IMG_4127.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5423743622235493346" /></a>Tara & Markhttp://www.blogger.com/profile/05784716340853797622noreply@blogger.com0tag:blogger.com,1999:blog-2935014311426434166.post-37312689979880993392010-01-06T13:14:00.000-08:002010-01-06T13:21:55.494-08:00<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi5aaWWMS8rdZhVQWZwKMeku7_9OVEc6l17cjLd99OmAx53uTzsvnGRmcxAOpgqzMAD92wTBITFWgOSDayIqT_Tx8ZI7xlLymjEBCYRoaK83xF4pM9gKXvnP3OOEZKvlfquT4yZGoVSV8B3/s1600-h/IMG_4112.jpg"><img style="display:block; 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margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 179px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjmhL8UwkDXBao1CusCFXRS0ZbROG-8HlFE1Z7NiBKokLOYvthiKGDItC-TwjuiYtETtiJ7Xe216buoAW84-3GFT3aGXnHrXl0tNdGuaT5tAnFSbFy9fpfeq5QmuyuMo-XoAyMpRzZOmOgl/s320/IMG_4092.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5423739843182664018" /></a>Tara & Markhttp://www.blogger.com/profile/05784716340853797622noreply@blogger.com0tag:blogger.com,1999:blog-2935014311426434166.post-69658094465658004272010-01-06T13:10:00.000-08:002010-01-06T13:13:50.421-08:00<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEihPME5LQWJXeuvd5zgS_ubvZcECFkoaeT69HqYhyphenhyphenoCY0tXylbZ-hBPyltqNkoDO3QXCzh3o0AbpfPlXBBSO5_dW01f1sHvFQ06jxRs-4foUgJFtD50jB_GV7neApov7E3cMAPcYfWzkQ5k/s1600-h/IMG_4085.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 179px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEihPME5LQWJXeuvd5zgS_ubvZcECFkoaeT69HqYhyphenhyphenoCY0tXylbZ-hBPyltqNkoDO3QXCzh3o0AbpfPlXBBSO5_dW01f1sHvFQ06jxRs-4foUgJFtD50jB_GV7neApov7E3cMAPcYfWzkQ5k/s320/IMG_4085.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5423738051750732834" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjIc1F4xeozfU4capvi1Ws46ImB_uh8BZW3O1PpH66Wl3fNduft99Jxt1AVeuYhcYhYAhoQaEScJHhYAD0TXoYqijsdpyEix9w1Sab7DTcyx3sreKeJCTr5uoOgtHXWUk5bawdI1FC0y0sc/s1600-h/IMG_4062.JPG"><img style="display:block; 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margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 179px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj86fz_eI4_2wfT0DMwfJ_pCcX6ENBk65QmRDphs9xwsMnaFvnZzix6Zza5C3RBQU6uMF8__5VrmoPk-aIAlNm1wQ-3KxmVYnKy0-HYnP3TIIfc9VSjr1yYOlqddDTOFpvilmyDz6URNfCq/s320/IMG_4050.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5423738034185567650" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjkRgUc73sFYnpeHJlV8FICt3p3YfsGml9qialEKVhI1mabvK0hzfVzLBIW5ZznkP2CXLIyxvwS0RLLs7qRiBF06bqrPqqEhN6KvXe3iW_tM0LJLZMaaChEVB0Z-KNY5LWeV0bc_II_Qszz/s1600-h/IMG_4049.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 179px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjkRgUc73sFYnpeHJlV8FICt3p3YfsGml9qialEKVhI1mabvK0hzfVzLBIW5ZznkP2CXLIyxvwS0RLLs7qRiBF06bqrPqqEhN6KvXe3iW_tM0LJLZMaaChEVB0Z-KNY5LWeV0bc_II_Qszz/s320/IMG_4049.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5423738028977724514" /></a>Tara & Markhttp://www.blogger.com/profile/05784716340853797622noreply@blogger.com0tag:blogger.com,1999:blog-2935014311426434166.post-26251555414174349062010-01-06T13:04:00.000-08:002010-01-06T13:10:05.644-08:00<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhwPlnaOPRB7IEsN6EAn9TxFfoTBcLEWXK3nJF4fqDkCuW8V4sYEShyphenhyphenXIEaBPyC6u1_A8M3Qc5_iidurT1SH3b5NHnsPU4DLzOMuxnMDmY7joL8vZmkOwYj60aSXO1a5C0nxsu4QBRaerwx/s1600-h/IMG_4045.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 179px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhwPlnaOPRB7IEsN6EAn9TxFfoTBcLEWXK3nJF4fqDkCuW8V4sYEShyphenhyphenXIEaBPyC6u1_A8M3Qc5_iidurT1SH3b5NHnsPU4DLzOMuxnMDmY7joL8vZmkOwYj60aSXO1a5C0nxsu4QBRaerwx/s320/IMG_4045.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5423736706166124562" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhevXsCU1mwpjAriGGXLkHBSlUvC8_bt6Tu2nwoht8g6-H4yCeG0d53hcSB672-xfCDoDN1pfZdSo_enTcFZ_O_nsGL_WUOzliknBPxf4barIR8m3lE9cvrA96PCHXWcCW3WAqYmSwEU3gp/s1600-h/IMG_4037.jpg"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 179px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhevXsCU1mwpjAriGGXLkHBSlUvC8_bt6Tu2nwoht8g6-H4yCeG0d53hcSB672-xfCDoDN1pfZdSo_enTcFZ_O_nsGL_WUOzliknBPxf4barIR8m3lE9cvrA96PCHXWcCW3WAqYmSwEU3gp/s320/IMG_4037.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5423736699612787554" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgEXFMzNoeWQLmcZUb5lcxFLdKAI7qja09MYtJs97AblRy-Jf0Hh5iyP83LPErsFG_jApUcaK-3fgWscYS_K5SOZfgc9K3rTWRyvroRlGqLrX4W6FVsrGyzaT1ENLKGzyYxHzIq5Kz_HTBr/s1600-h/IMG_4034.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 179px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgEXFMzNoeWQLmcZUb5lcxFLdKAI7qja09MYtJs97AblRy-Jf0Hh5iyP83LPErsFG_jApUcaK-3fgWscYS_K5SOZfgc9K3rTWRyvroRlGqLrX4W6FVsrGyzaT1ENLKGzyYxHzIq5Kz_HTBr/s320/IMG_4034.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5423736692712838594" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiAqXaCmg9dodpEUOkEUTfw6ms8uuougXyCB4kg4CxvDFkAEk7THu2sUUaCOO3kFxCMIbnbdrREdHFd2kU1HEjyeFQfI6XwfOwGzuhVwn9YuwYtcPUe77vcGvaTm5Ekks-YnQV0njmoKb77/s1600-h/IMG_4033.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 179px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiAqXaCmg9dodpEUOkEUTfw6ms8uuougXyCB4kg4CxvDFkAEk7THu2sUUaCOO3kFxCMIbnbdrREdHFd2kU1HEjyeFQfI6XwfOwGzuhVwn9YuwYtcPUe77vcGvaTm5Ekks-YnQV0njmoKb77/s320/IMG_4033.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5423736683999971682" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjl-wscDMWp8xq8cOoO1cHkuIMImYdFbEQEf_A6c_tIRtZ2ea-4beN1hjHfDrO55zG58E2aZgP35F7-XWblEjsM7K_BGTnIectHJ0w5vlPnNEZ4eDA9TGBBKtApYxVC7KgjbWImFLs_58NR/s1600-h/IMG_4030.jpg"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 179px; height: 320px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjl-wscDMWp8xq8cOoO1cHkuIMImYdFbEQEf_A6c_tIRtZ2ea-4beN1hjHfDrO55zG58E2aZgP35F7-XWblEjsM7K_BGTnIectHJ0w5vlPnNEZ4eDA9TGBBKtApYxVC7KgjbWImFLs_58NR/s320/IMG_4030.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5423736681130166274" /></a> Halloween was a great day for us. She had just gotten over the flu, we found out we were pregnant a couple days before that and she started sitting all by herself!Tara & Markhttp://www.blogger.com/profile/05784716340853797622noreply@blogger.com0tag:blogger.com,1999:blog-2935014311426434166.post-18440410538473367672010-01-06T12:55:00.000-08:002010-01-06T13:04:00.883-08:00Ok so ya all know that I don't put pictures up until I download them all on my computer. Here goes the last 3 to 4 months of them, enjoy!<br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjkX7hB034Ru_qngKAydwoYc0sKxhAMipLibgBLjwLf8vkkkPaQ6-bxKXdcTCPednBapIxJvveHnkTAl380zw_SJojzmgf5WOFOo01OXdzM1QimDA0hqYIKU5mNrTp2F3Lci3SiLIj3PRTY/s1600-h/IMG_4022_2.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 179px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjkX7hB034Ru_qngKAydwoYc0sKxhAMipLibgBLjwLf8vkkkPaQ6-bxKXdcTCPednBapIxJvveHnkTAl380zw_SJojzmgf5WOFOo01OXdzM1QimDA0hqYIKU5mNrTp2F3Lci3SiLIj3PRTY/s320/IMG_4022_2.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5423735042582889186" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh392VOd68H4UtQiUY02qWRaeyo9f9Ti5lDASuhXnNTLfH-iyye0dwxEHRQkNxfdWaHCj_uRrjrwYtnAJUk3BuLaBHU-70217_pjnc4KOC46PX-WY4EZgyihDtR6ir0pyEiaUIbIgVuVNBZ/s1600-h/IMG_4023.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 179px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh392VOd68H4UtQiUY02qWRaeyo9f9Ti5lDASuhXnNTLfH-iyye0dwxEHRQkNxfdWaHCj_uRrjrwYtnAJUk3BuLaBHU-70217_pjnc4KOC46PX-WY4EZgyihDtR6ir0pyEiaUIbIgVuVNBZ/s320/IMG_4023.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5423735032098643778" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEigT9zlfkELOgNplkw62JLIEb9cOLup8PgODO_OIQ5RwIqYWARFXJlF4g4n9J-IewmGQ4i4hTw7FWTOST8NA_e3dVEDXrvzRbaBNMAnki_Svd9-aclBrielTGLNSMsQuZ6hMevCEIx5L4Tp/s1600-h/IMG_4019_2.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 179px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEigT9zlfkELOgNplkw62JLIEb9cOLup8PgODO_OIQ5RwIqYWARFXJlF4g4n9J-IewmGQ4i4hTw7FWTOST8NA_e3dVEDXrvzRbaBNMAnki_Svd9-aclBrielTGLNSMsQuZ6hMevCEIx5L4Tp/s320/IMG_4019_2.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5423734561373073666" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgGVSWv6W5aR3wXV_mW_HNiWr7q-HAi5x7oznecYssle7_iq2xedRSSZ59gBWQWlwx03sNpJxV_bMEY_Py2OnNvF2c3pZntH94YRT0hKGPqm87OaYMEWYlGHUDkpJMiOs5CYrY4jB9D9Eq6/s1600-h/IMG_4010_2.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 179px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgGVSWv6W5aR3wXV_mW_HNiWr7q-HAi5x7oznecYssle7_iq2xedRSSZ59gBWQWlwx03sNpJxV_bMEY_Py2OnNvF2c3pZntH94YRT0hKGPqm87OaYMEWYlGHUDkpJMiOs5CYrY4jB9D9Eq6/s320/IMG_4010_2.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5423734551545603106" /></a><br />Brynlee got a massage from her Grandma Lisa, it was so cute, she loved it!Tara & Markhttp://www.blogger.com/profile/05784716340853797622noreply@blogger.com1tag:blogger.com,1999:blog-2935014311426434166.post-607539641177864272009-12-20T15:32:00.001-08:002009-12-20T15:32:01.080-08:00Brynlee spinning cookies in her stander.<div xmlns='http://www.w3.org/1999/xhtml'><p><object height='350' width='425'><param value='http://youtube.com/v/p2kMLWzuiAQ' name='movie'/><embed height='350' width='425' type='application/x-shockwave-flash' src='http://youtube.com/v/p2kMLWzuiAQ'/></object></p></div>Tara & Markhttp://www.blogger.com/profile/05784716340853797622noreply@blogger.com8tag:blogger.com,1999:blog-2935014311426434166.post-53682700743601489992009-12-06T14:30:00.000-08:002009-12-06T14:40:39.121-08:00SOOOOO Exciting!!!!!So Dr. Swoboda saw the videos of Brynlee sitting up and has re diagnosed her as a weak type 2. We are so so so excited and feel so very blessed right now! Even though it doesn't really change anything as far as how immune compromised she is, this possibly means that we get quite a few more years with our angel. It is like winning the lottery for us. We now have the chance to make it to a better treatment or cure, then again we just never know. My daughter died on me just a couple of months ago, then to hear this news absolutely blew me away! Keep your heads up all my fellow SMA families, there is hope!<br /><br />Oh and P.S. I am going to put more pictures up soon, I promise.Tara & Markhttp://www.blogger.com/profile/05784716340853797622noreply@blogger.com11tag:blogger.com,1999:blog-2935014311426434166.post-76839464166877444342009-11-29T10:33:00.000-08:002009-11-29T10:41:38.838-08:00New Videos!These new videos are super amazing. You all remember me posting about losing hope when they told us she lost half of her strength right? Well this was about 3 weeks or so after that. I tell you what, my little girl is one hell of a fighter! Just when everything is going downhill she goes and shocks the shoes off of us! Brynlee we are so proud of you!<br /><br />In other news, I anounced this on facebook so just about everyone should know by now. I will post here though in case we missed anyone. Brynlee is going to be a big sister! We are due around the first of July with an SMA free baby. The baby is already measuring big so I'm thinking with how big Brynlee was at birth they will end up inducing me again. So we will probably end up having a June baby. <br /><br />So much going on the past couple months, sorry I haven't updated more!Tara & Markhttp://www.blogger.com/profile/05784716340853797622noreply@blogger.com10tag:blogger.com,1999:blog-2935014311426434166.post-34225725669268217542009-11-29T10:29:00.001-08:002009-11-29T10:29:19.184-08:00MOV02C.MOD<div xmlns='http://www.w3.org/1999/xhtml'><p><object height='350' width='425'><param value='http://youtube.com/v/2L5gak0zNXE' name='movie'/><embed height='350' width='425' type='application/x-shockwave-flash' src='http://youtube.com/v/2L5gak0zNXE'/></object></p></div>Tara & Markhttp://www.blogger.com/profile/05784716340853797622noreply@blogger.com3tag:blogger.com,1999:blog-2935014311426434166.post-56931156579843455792009-11-29T10:28:00.001-08:002009-11-29T10:28:49.238-08:00MOV02F.MOD<div xmlns='http://www.w3.org/1999/xhtml'><p><object height='350' width='425'><param value='http://youtube.com/v/S5AZ3W-qkiM' name='movie'/><embed height='350' width='425' type='application/x-shockwave-flash' src='http://youtube.com/v/S5AZ3W-qkiM'/></object></p></div>Tara & Markhttp://www.blogger.com/profile/05784716340853797622noreply@blogger.com1tag:blogger.com,1999:blog-2935014311426434166.post-55581120046882657172009-11-06T15:21:00.000-08:002009-11-06T15:26:03.624-08:00I got this from the Strong's and thought I would let anyone know who hasn't read it. This is good stuff people! We are moving in the right direction. They are really thinking that there is a link here and it would be great for parents to be prepared in the case of SMA. In the future I hope that all pregnant women are given an ultrasound around around 10 weeks. You just never know that this runs in your family until it pops up!<br /><br /><br />Subject: SMA Research Needs SMA Moms<br /><br />There is a new study that may help pave the way for SMA carrier screening to be offered to more women. Please help this study by calling Dr. Zadeh -- (650)721-1439. There is no blood work needed. There is no cost to you. Dr. Zadeh simply needs access to your medical records -- specifically the neck measurement of the fetus done around 10 weeks. Any mother who has or had a child with SMA can be part of this study.<br /><br /> From: Neda Zadeh, M.D. -- <br /><br /> You are invited to participate in a research study on the possible association between Nuchal Translucency (NT) measurement and fetuses affected with Spinal Muscular Atrophy (SMA). Our goal is to determine whether there is an association between increased NT measurements and SMA. If so, diagnostic testing for SMA may be offered to women with increased NT and no evidence of a chromosome abnormality of the fetus. We are only recruiting mothers of children confirmed to have SMA by molecular testing.<br /><br /> Involvement in this study is entirely voluntary and confidential. It will require your permission to access particular medical records for both you and your child. Your participation will not involve invasive procedures such as blood draw or tissue sampling. There will be no monetary compensation for your participation.<br /><br /> If you are interested in participating, or would like to hear more about this study, please contact me at (650)721-1439.<br /><br /> Sincerely<br /><br /> Neda Zadeh, M.D.<br /> Medical Genetics Fellow<br /> Stanford University<br /> Division of Medical Genetics<br />--------------------Tara & Markhttp://www.blogger.com/profile/05784716340853797622noreply@blogger.com2tag:blogger.com,1999:blog-2935014311426434166.post-52201358464675705942009-10-29T08:16:00.000-07:002009-10-29T08:22:23.244-07:00Brynlee is still doing OK today with just the fever. Her ped. called me yesterday and said that it IS NOT THE SWINE FLU! She did test positive for influenza type a so they automatically assumed H1N1. They don't know what kind of flu this is but let me assure you infectious disease is all over it! I am so happy its not H1N1! Now I am thinking(fingers crossed) that this fever is all she is going to get. We are thinking about all of you families who are dealing with the flu right now.Tara & Markhttp://www.blogger.com/profile/05784716340853797622noreply@blogger.com8tag:blogger.com,1999:blog-2935014311426434166.post-34645172673694341522009-10-28T08:38:00.000-07:002009-10-28T08:47:30.444-07:00Here we go!Brynlee woke up with a fever yesterday of 103.3. I had Mark bring her into the pediatrician because I was not feeling well. Our Ped, called us back last night and told us that Brynlee has the flu. We won't know for a couple of days if it is the swine flu but she is pretty sure that's what it is. We started her on Tamiflu last night and everything seems to be ok so far. Her chest x-ray looked great and she still doesn't have a cough or anything respiratory going on so far. Fingers crossed that this is the worst it gets. She still has a fever of 100.4 on Tylenol today. I am waiting for the ped to call me back to let me know what to expect.Tara & Markhttp://www.blogger.com/profile/05784716340853797622noreply@blogger.com8tag:blogger.com,1999:blog-2935014311426434166.post-50855948046535940032009-10-06T14:19:00.000-07:002009-10-06T14:28:37.326-07:00Sorry I haven't posted in a while. Brynlee has had therapy 4 times a week the past couple of weeks so we have been busy. We had Brynlee's clinical appointment today. Good news is that her Dexa scan for bone density looks great! She has improved by ten percent and the scan lady was very pleased. Breath, Ok, not so good news. She had her MUNE testing to test her strength. The last time we were there Brynlee was 7.6. Today 3.3. She has regressed so bad that I can't stop crying today. I just feel that no matter how hard we try it is never going to be enough. I am losing hope.......<br />On her physical therapy scores it went from 24 to 19. Being sick 3 times in a row really knocked her out. She has gained 2 pounds in the last 3 weeks(Yay)! She is now in the 90 to 95th percentile for height and less then the 5th for weight.Tara & Markhttp://www.blogger.com/profile/05784716340853797622noreply@blogger.com10tag:blogger.com,1999:blog-2935014311426434166.post-44956696182353950432009-09-06T20:38:00.000-07:002009-09-06T21:16:43.476-07:00We are home!We made it home yesterday after only 1 day in the PICU. This was the shortest stay ever. We fought most of this one at home and had made it 5 days before going in. Brynlee gave us a couple of good scares on this one though. We camped out in our living room so we could get up every three hours to do her treatments. Needless to say we were pretty tired this week. <br />Thursday morning during her 6 am treatment she decided to desat. She sats made it all the way down to 30. Normal for Brynlee is 98. She started to turn a little blue but we suctioned her and got a lot of stuff out and she came back up pretty quickly. Later that day at 3:30 while I was doing a treatment she started getting angry. When she is sick she hates her treatments. Mark was at work so it was just Brynlee and I. My friend Danny was on her way over to help me out and was about 20 min away. Brynlee got mad and started desating really fast. She went from Blue to white in a matter of seconds. Her oxygen sats went clear down to 2 for about 4 min. I was trying to get her to breath and on the phone with 911, yelling at the guy to tell me how to do CPR. When stuff like that happens everything you know goes out the window. He was taking to long telling me what to do so I just grabbed her cough assist and started coughing and suctioning her. she finally opened her eyes a little a second before the cop got here. I was putting her Bi Pap back on when the paramedics got to our house. Brynlee was still just barely opening her eyes. By then her oxygen was up to about 90 with 5 liters bled in. I asked them how long what happens if someone is out that long and they said between four to six minutes, someone can become brain dead. I started freaking out. They asked me if I wanted to take her in and I said Brynlee do you want to go the the doctor thinking she wouldn't answer me. Her eyes popped open and she shook her head no. <br />The cop was flabbergasted and said is she responding to you? I have never been so happy in my life! My daughter rocks! Then Brynlee lifted up her hand and pointed at me and said "momma". Have I told you how much my daughter rocks yet?! They then asked me again if I wanted to take her in and I told them I wanted to do another treatment and see what she would do. They waited while I did a treatment and after I was done her sats came up. I had the cop drop her oxygen down and told them we would be ok. They left and not long after Brynlee was sating great on only 1 liter.<br />6 am the next morning she did the same thing. Mark was with me this time though thankfully so he made the call to 911 while I was trying to keep her going. We went through the same scenario and sent them on there way. After an hour though she wasn't coming up and she was on 5 liters. So we called them back for a ride up to primary's. <br />When we got to the hospital the RT did her treatment and she started to do the same thing again. He said that he thought she was doing it on purpose. We had also forgot to fill up her humidifier for about 2 days so that might have played into it also. So now we get to deal with her getting mad and doing this every time she is sick. So we are home after one day in there and she is almost over this one. Hopefully by Tuesday she will be her cheerful happy little self. I am just grateful she is still her with us. It just reminds me how fragile she really is. I don't aprecciate the reminder though and I hope Brynlee got the memo that when she does that kind of stuff she has to go to the doctor!Tara & Markhttp://www.blogger.com/profile/05784716340853797622noreply@blogger.com7