Brynlee sats are finally around 94 this morning with no bi-pap. This makes me so happy. This means that she is starting to kick this colds butt!
We have been asked to speak at a charity function for our homecare company. They want me to talk about Brynlee and her new chair and how much it means to her. I beleive they will be helping families that don't have insurance get wheels for their kiddo's. I'm kinda nervous because I don't do so good speaking in front of an audience. They are thinking they will be about 100 people there, yikes! Wish me luck and I hope that we can inspire them so that other kids can get some independance to.
We are also having the first Utah SMA walk and Roll on Brynlee's Birthday. It is the 29th of August in Park City. We have decided that she has more than enough toys. For her birthday we would like to have anyone who wants to help find a cure for SMA to sign up for the walk and roll on Brynlee's team. You can still register if you are not going to be able to make it, just click on that button while registering. The link to the site is http://www.utahsma.showitsite.com/. Please, please, help us out in finding a treatment and more importantly a cure. We are so, so close!