So Dr. Swoboda saw the videos of Brynlee sitting up and has re diagnosed her as a weak type 2. We are so so so excited and feel so very blessed right now! Even though it doesn't really change anything as far as how immune compromised she is, this possibly means that we get quite a few more years with our angel. It is like winning the lottery for us. We now have the chance to make it to a better treatment or cure, then again we just never know. My daughter died on me just a couple of months ago, then to hear this news absolutely blew me away! Keep your heads up all my fellow SMA families, there is hope!
Oh and P.S. I am going to put more pictures up soon, I promise.