Nice! She is so adorable! How's she doing with it? I want desperately to get Dakin his motorized chair but we need a van first...I LOVE the hot pink!!!
Hello Tara! Brynlee looks so good in her new chair. Hope you get to go home very soon. About the RT's:yeah, it's sad that most of them are not familiar with the CA or they are always in a rush because they usually have a huge caseload. Whenever Jojo goes to PICU, we do the treatments ourselves; they hand us the meds and we take care of everything. Of course not all hospitals are the same. On a different note, I just read on SMAspace about another Mom asking about petechiae (Kaitlyn Hatchard's MOm). I mentioned you on her forum; I hope you dont mind. Take care...Jojo's Mom
I'm just following up on your last post -- if you want to be with her you can demand that they give you a pull out chair bed! You have every right to be there with her if she is desating. Gwendolyn is always fine as long as I am there, too. I know you will do what is best for you, but I just wanted to give your an SMA-Mommy hug to let you know I understand when hospitals are so frustrating.
Our kiddo's just want their mommas. I do her treatment during the day while I am there, which is why she does so good during the day. Its just frustrating that the other RTs just can't figure it out. I did ask them for a pull out chair but the spot we are in there is no room for a chair. I finally told them last night that they had better find Brynlee her own room or one on the floor because its just getting silly not being with her anymore!
congrats on the new wheels! she looks like a pro already.
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