I am such a slacker. I just cant seem to get up the energy to get on here and post. After 15 days in the PICU with a virus that is like RSV, Brynlee and I are home!It was a long scary one this time. Thankfully she was only intubated for a few days. Brynlee has this little panic thing that she does now when someone else is doing her treatments. She even does it to me sometimes. She starts hyperventilating which closes off her throat, her sats then drop with lightning speed. The lowest O2 we saw was 30. Even though her lung was collapsing I am certain that this had a little bit to do with her intubation. They were doing a treatment on her when I had gone to lunch. Anyways her throat closes and doesn't let any air into her lungs. She starts turning blue and gets very lifeless. We have to put her Bi-pap back on, crank up the O2 and shift her neck so that she cant close it off. When she can't fight it anymore her O2 starts to climb again. They started giving her drugs for a while there during her treatments for her anxiety. She started telling all the RT's that mom was going to do her treatments.
They put a pic line in after I kept getting on them about taking so much of her blood. I can't believe how much blood they think they need everyday for stuff that is not going to change her treatments anyways. I told them that she was already on antibiotics and to stop taking so much. She is now Iron deficient, HUH, WONDER WHY?!! The Pic was great for us because it wasn't in to long and she didn't have to get anymore pokes. Her IV's kept going bad anyways. Her veins are so small.
I had a hard time this visit because it took three docs to do everything. It took 3 to intubate and 3 to place the NJ(feeding tube through her nose). Apparently my little ones anatomy is a little out of place. Her stomach had stopped working the way it was supposed to and she wasn't digesting anything which is why she needed an NJ even though she has a g-tube.
After many nights of sleeping on an uncomfortable chair while 6 and a half months pregnant we got home on Saturday. We got to have our princess home for Easter and she loved decorating her eggs. I am still doing her treatments every 4 hours during the day and every 5 at night. I am loving the fact that we got her a big ol queen size bed. Now I just sleep right next to her when she is sick and Mark comes and wakes us up when its time for her treatments.